Public Awareness Materials
AHLA issues guide to end-of-life legal issues
The American Health Lawyers Association has released a guide outlining the key legal and practical issues that arise when caring for individuals who face a life-limiting condition. The resource provides key questions to guide families in making decisions along the continuum of care, and stresses that individuals should plan for the future and make informed choices now to ensure that their wishes are known at a future time when their physical and/or mental functioning may be impaired. The AHA in May launched a national education campaign, "Put it in Writing", to encourage Americans to document their end-of-life preferences in advance directives while they are still healthy and able to make decisions.
Isn't It Time We Talk Consumer Education Materials
The Carolinas Center has the following printed consumer education materials available to order. To order these materials, simply download and complete our order form and then fax it to 919.677.4199, Attention: Publication Orders.
The following publications are now available for purchase:
Planning Your Care at the End of Life...
How to Talk About Your Choices
The Center's four-panel advance care planning brochure gives an overview of advance care planning as well as specific questions to consider and discuss, and emphasizes the importance of conversation about end of life wishes. It also includes definitions of advance directives. The brochure is a great introductory resource for public places or for mailings. Minimum order of 50.
Download the Advance Care Planning Materials Order Form here.
Isn't It Time We Talk? How to plan for your care of the end of life...a guide to advance care planning
This guide to advance care planning, developed in collaboration with other end of life experts across the Carolinas, is now available from The Carolinas Center. The planning guide is a step-by-step workbook designed to help individuals and families plan for the care they want at the end of life.
The cover?s front and back pockets were designed to hold advance directive forms and other information.The guide includes:
- Specific information about treatment options
- Thought-provoking questions about values and goals
- Tips for discussing the choices made,
- and a thorough explanation of advance directives.
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There are many specific applications for the advance care planning guide. Think about hospices and hospitals - and other health care professionals, civic organizations, attorneys and estate planners, senior centers, faith communities, and physicians? offices as well. To order, contact Natalie Leiner at 919.677.4126 or nleiner@cchospice.org
Download the Advance Care Planning Materials Order Form here.
Download the Power Point Took Kit here.
Caring Connections
CARING CONNECTIONS, a program of the National Hospice And Palliative Care Organization (NHPCO), is a national consumer engagement initiative to improve care at the end of life, supported by a grant from the Robert Wood Johnson Foundation.
Caring Connections
- Provides free resources, information and motivation for actively learning about end-of-life resources
- Promotes awareness of and engagement in efforts to increase access to quality end-of-life care
- Helps people connect with the resources they need, when they need them
- Brings together community, state and national partners working to improve end-of-life care
www.caringinfo.org provides a variety of free resources on topics including:
- Advance care planning
- Caregiving
- Pain
- Financial issues
- Hospice and palliative care
- Grief and loss
First-ever statewide consumer survey on the end of life
First-ever statewide consumer survey on the end of life - UPDATED with African American responses.
A North Carolina survey of consumers' attitudes toward end of life care shows that individuals' wishes related to dying don't necessarily translate into actions while living. Only half of those surveyed said they had taken definite steps to see that their wishes are followed, despite having thought about end of life issues and having discussed them with immediate family. In November 2002, 8,000 AARP members were surveyed by mail on end of life issues in a project co-sponsored by The Carolinas Center and AARP North Carolina.
To see the full report (PDF format) click HERE.
To view a second survey report that shows the similarities and differences between African American and non-African American responses; click here.
Using the end of life survey: tools for hospices and end of life care coalitions
We have created a media kit and other tools to help you use the "North Carolina Consumer Survey on End of Life" results as a way to reach out to your communities.
For hospices, there is a tip sheet, the media information (press release, key survey findings, consumer tips & resources), sample letters to the editor and a sample op-ed piece. Start with the tip sheet to make the best use of the rest of the material. The press release, letters and op-ed can all be customized for your community.
For end of life care coalitions, there are separate tip sheets for North Carolina coalitions and for Rallying Points coalitions nationwide. Start with the tip sheets to make the best use of the rest of the material. In addition, you will find the media information (press release, key survey findings, consumer tips & resources), sample letters to the editor and a sample op-ed piece. The press release, letters and op-ed can all be customized for your community.
2004 South Carolina Public Attitudes Survey
The South Carolina State Survey is a cost-shared random probability survey of citizens age eighteen and older living in the State of South Carolina that is conducted biannually by the University of South Carolina's Institute for Public Service and Policy Research. The South Carolina State Survey allows policy makers, researchers, and other interested organizations an opportunity to gather reliable data in a timely and cost-effective manner.
To see the full report, click HERE.
To view the Executive Summary, click HERE.
For Resources on Grief: